March 7, 2020
The Third Annual Plunge For Elodie will take place on March 7, 2020 at 8:30AM at Morses Pond in Wellesley, MA with breakfast to follow at the Wellesley College Club also in Wellesley. Whether you Take the Plunge, cheer us on, donate, or do a Virtual Plunge of your own, please join us in supporting this incredibly worthy cause.
On July 15, 2016, Elodie was born with a rare genetic disorder called Epidermolysis Bullosa ("EB"). This disease means that Elodie is missing a critical protein that helps bind the layers of the skin together, making her skin extremely fragile. Her skin breaks or blisters with everyday contact. There are no cures or treatments for this disease. The only option is to care for her through extensive bandages that are changed daily. Despite the severe pain, discomfort and challenges from her disease, Elodie remains a happy, well-adjusted toddler. She inspires us to fight daily to bring her a much needed treatment, and ultimately a cure. Please join us in our fight to #healEB!
100% of the funds raised directly benefit the EB Research Partnership (EBRP), the largest non-profit dedicated to funding research aimed at treating and ultimately curing EB.
ABOUT EB RESEARCH PARTNERSHIP
EB Research Partnership grew out of collaboration between the Jackson Gabriel Silver Foundation and Heal EB, two organizations that were founded by families on separate coasts that shared a singular goal: to find a cure for their sons, Jackson Silver and Michael Fullmer, and all others that suffer from EB. With support from close friends Jill and Eddie Vedder, the lead singer of Pearl Jam, EB Research Partnership was founded in 2014.
The EB Research Partnership is the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure. To learn more visit ebresearch.org